plan of action since being diagnosed with Gastroparesis has alot to do with self medicating with exercise and completely changing
my diet. I tend to consume more liquids than solids which is easier on the gi tract. I was never able to find any relief
with medications due to the side effects that only make my Gastroparesis worse. The added risks always outweighed the
benefits. Since my diet is so limited due to my Gastroparesis, I use either my 'Jack LaLanne' juicer or 'Nutribullet'
to help liquefy fruits and vegetables and alternate between various protein powder supplements in order to help provide
my body all the necessary nutrients. I exercise during my good days by using a home treadmill, resistance machine and
an abdominal belt called, 'Slendertone' which has recently been FDA approved. By trial and error I have continued to successfully find foods that work best for me.
I consume various types of sports drinks, Crystal Light products, Vita-water and Smart water mixed with Pedialyte
to help stay hydrated during my GP related weekly treatments. I take a daily liquid multivitamin or chew
gummy vitamins to help replace nutrients that my body lacks by not eating a variety of foods.
I had another EGD procedure this time with balloon dilation, stomach biopsy to help with esophagus constriction
(Diffuse Esophagus) due to acid reflux and my Gastroparesis. Doctors are not sure if the esophagus will stay open
or if the procedure will need repeated within the year. The constriction is very common with Gastroparesis patients due
to stomach acid and food that has not digested however 'Diffuse Esophagus' will not worsen but tends to become a permanent
Final meeting with my doctors. We have exhausted all possible tests over the past 19 months and still nothing to show
the origin of why my stomach stopped working. My doctors tend to agree medication at this point unfortunately that is not
designed for Gastroparesis will only add unwanted side effects so the goal is to continue with the alternate treatment
at home. I continue to have hope that one day FDA will find a medication to help all patients struggling with Gastroparesis.
Alternate treatment (exercise, heat therapy, liquid diet) continues to remain successful and I am finally making
my way back to a somewhat normal life.
Testing will continue for current problems with slow motility of the GI tract. Specialists are now sure this is related
to my Gastroparesis. Further testing on the pancreas will be observed as well liver levels because of possible food backing
My Gastroparesis is now leading to other digestive problems and in general slowing the entire digestive process. I am
starting to get burned out of daily exercise to keep the food going so trying to find some outdoor activities. I am continuing
to have problems with dehydration (electrolytes).
After visiting the hospital over the weekend I was told by my doctors that my colon function (motility) is not working so
I am going back to my GI Specialists to discuss the options that might allow me to continue living a better or somewhat more
normal life. It could take 2-4 weeks to clear the colon completely out so liquids are now a normal part of my daily diet and
form of nutrition. Not sure of my future but anything is possible with strong support, hope and prayers.
News from the docs not good and coming to terms that the colon has little to no motility, at this point they are not sure
what to do next. I am trying to stay mentally grounded as well keeping my mind occupied with work.
The colon is finally but slowly clearing out day by day. I have learned a tough lesson over the past 2 years
as well what true friends in life really mean and if they will stick by your side through the best and worst of
times. I will move on with my life the best I can and accept what I have before me with God's help and I will be ok.
Whether you like it or not life is certainly full of changes, you may not like it but it is what it is....................
Working with doctors in August on limited upcoming tests to find out the plan of action now for the loss
of my colon motility.
Polyp, abnormal tissue growth located in colon were both completely removed this week. Gaining my strength back from
4 week strict liquid diet. I will be continuing with liquids until pathology comes back in a week with lab results
from biopsy. Doctors still not sure on plan of action on motility function of the colon.
All of my doctors/specialists have been truly wonderful these past 2 years, all additional treatment options have
been exhausted however I am grateful for their honestly and never giving up on me. I will be seeing another GI group
of 4 specialists late August in hopes of any other potential treatments or insight they can offer the other physicians to
help with the loss of motility with my stomach and colon due to the Gastroparesis. I have slowly learned
to fully accept my illness and each day living life to the fullest. One must never give up on hope however you must face
the road that leads ahead sometimes to the unknown. There 'is' always a light at the end of the tunnel.
Now working on round #3 of testing. There is a possible Gastric Pacemaker testing later this fall at a research hospital that
they might be able to get me into as well finding a Gastric Motility clinic/research hospital to help
find a way to make life more tolerable with my Gastroparesis.
Recovering from medical procedures and stomach/small intestine biopsy. Will be moving forward with hospital Dietitian
and Nutritionist mid November as well testing for potential Gastric Pacemaker and colon motility.
Trying to maintain my weight and stay hydrated as well out of the hospitals. Amitiza- A new medication on the
market for the colon did not work seeing I had a very bad reaction so back to square one.
Long meeting today working with a team of registered Dietitians at the hospital to get back on my feet. My weight is at an
all time low of 112 pounds and my body is starting to use muscle for fuel-not good. I might have hit rock bottom but I will
continue to fight to get back up that hill and get better! Trying some alternate treatments for the next 6 weeks if that does
not work I am seriously thinking of using "Nocturnal Jejunum feedings" to get my weight back up.
So far gained 2 pounds, up to 114 with the new diet plan. Still trying alternate foods and vita-waters/protein drinks however I
am finally having more good days than bad days. Now the real test-Holiday foods, heehee. Next visit with Dietitians
in 2 weeks. Indeed life is good! :)
A New Year 2007 and another chance to make a fresh start. Opting to not seek continued help from Dietitians. The new
diet was not working so reaching from strength deep within to continue the fight! Sure I have my bad days, we are all
human but I will never give up the fight....
monitoring on my pancreas levels with new diet. Still in question for ERCP procedure due to possible Gastroparesis complications
with biliary ducts, I prefer not to have it so undecided at this moment.
Having great success in therapy helping to deal with my Gastroparesis as well coming to terms with the other parts of my life
that it affects on a daily basis.
Giving massage therapy a try to help with the bowel, stomach pain and relax the muscles from spasms. Thank goodness weight
is holding steady around 113, WHEW!!
What a wonderful Gastroparesis focus group meeting tonight and I just want to say you are all in my prayers. It truly was
one amazing experience to finally meet face to face with other Gastroparesis patients like myself.
Trying to find something to keep my intestines going-Miralax is making me dehydrated and causing fluids to retain in my bowels.
I can't handle much more liquid Drano-Golytley surgical bowel prep-similar to having colonoscopy prep once a week.
The specialists/surgeons can not seem to come to an agreement on surgery to help maybe eliminate some of this pain
and pressure so I might have to consult with another group of doctors. The fun never ends right? NOT!
Dr. Wells has been amazing and I thank him for being my shoulder to lean during the most difficult times. I think my acceptance
living with Gastroparesis has come to full circle now however I refuse and will never accept not having 100
percent of my normal life back. This gal will always keep her boxing gloves on. You know, Life IS worth fighting!
Working with specialists on upcoming extensive blood and genetic testing to see if I could possibly have any underlying conditions
such as Lupus, etc that could play a part in my Gastroparesis. Gut kicks that maybe I might have answers, one can only hope
Met with a wonderful Hematology group and amazing doctors. Went through my first round of extensive blood work and second
round next week. I told my doctor this is it, I will not be seeing anymore specialists nor more testing, enough is enough
already right, gees! Putting my faith in the good Lord and hope that maybe they can after 3 years 6 months
connect the dots. Time will tell.
All Hematology tests came back Thursday and seems the only direction is pointed back to severe Gastroparesis which
has my body all out of sync and causing alot of organs to just not function properly. There are no more specialists
left for me to see nor nothing at this point anyone can do. After 3 years 6 months it is now shifted to acceptance.
My true strength and character is now going to be tested so time for a new life and whatever my future may hold in front of
Keeping the faith and staying mentally strong for upcoming surgery November 2nd. Please keep the surgeons/doctors in
your prayers for hope and strength during this difficult procedure.
READY FOR SURGERY! :)
What a birthday gift of continued recovery physically & mentally from one 'Hellish Nightmare' surgery of twisted
bowels, severe dense adhesion's pulling down from my stomach, cleaning up strangled and gutted reproductive organs, freeing
up my bladder, etc. It was alot more than ever expected from my surgeons who told me and my family they literally sweat
the entire surgery with one refusing to ever go back in surgically. GP still present and 50/50 chance my colon function will
return back to normal. Of course this surgery is only a temporary fix seeing the severe dense adhesion's will grow back in
time, they are just not sure when. I am trying to find some hope.
Officially released as of this week from all Surgeons, Specialists, Doctors only to schedule yearly follow up appointments,
scopes and biopsies. There is nothing else left that medical technology has to offer and I have exhausted these
past 3 years 10 months all testing available to my doctors. Surgery was not a success for the motility of my GI organs
due to Gastroparesis. They were able to take down alot of scar tissue/adhesion's and untangle one heck of a mess but
found through testing it is not responsible for my Gastroparesis. I would have not done anything any different
through these years and at the end of the day I can say you know-'I fought this battle with everything I have, not giving
up, nor giving in but pushing with my doctors to find answers.' My life now is in the hands of future medical
technology- Gastroparesis medications and a possible cure. I have a new pair of boxing gloves, ready to keep up the fight!
I sure have learned alot along the way and hoping I can help many other fellow Gastroparesis patients through their life journey.
Fighting is worth it! Life is worth it & YOU are worth fighting for!
'As a GP survivor, I am well aware of just how debilitating Gastroparesis can become. When I can offer someone
else hope, I go to bed with a fulfilled life.'
What can I say on my 4 year GP Anniversary date but here I am and will keep on fighting! Looks like the boxing gloves will
stay laced up!
Having seizures. Valium helps with them while Neurology looks into possible link of the seizures due to Gastroparesis.
Vagus Nerve/Gastroparesis connection-Are we onto something? Continuing Valium therapy and so far in past 4 days only
had one seizure.
Life may not always be a bed of roses. Think with your brain, then your heart. When you do good onto others, good
will come back to you.
The day that life forever changed and time stood still. My CrystalBlue passed soundly away in her sleep on my bed with
her head on my pillow. This night I allowed her early sleep instead of GP office time with me which I never let happen, this
night she wasn't by my side, did she not want to me to see because of the pain it would have caused me? I know she is
still here in spirit by my side waiting for me to follow her through the gates of heaven. She was my everything and
indeed my heart is broken and shattered in a million pieces.
tests came back and had meeting to go over everything and long term care plan. I am waiting to meet with my doctors tomorrow
as well Cardiology group next week. To regenerate nerves would be impossible. Time to do alot of soul searching and blessed
to have my CrystalBlue home as of this afternoon. I made a special bed with her white blanket and beautiful crystal blue urn
and her favorite toys in it. I find peace and comfort in knowing she is now with me again and waiting to be once again by my
with doctors tomorrow to discuss seizure relation to my Gastroparesis. All medications available on the market Neurologists
fear will only create other GI organ problems. They gave me medication to take home earlier this week but the risks do highly
outweigh the benefits.
the seizures it has been decided after alot of soul searching and wonderful compassionate and understand specialists
the time has come to retire early after 20 years of working and go on permanent disability. The 'They don't ask
and I don't tell policy' with the company came full circle and I think corporate was more than a bit surprised with the
Gastroparesis Awareness Campaign organization and my life behind the scenes. I am at peace with the decision and indeed time
to give my body a break. In life one door may close but another one is always waiting to open.
sure is flying by this month. It's amazing but nothing is sometimes the absolute hardest thing to do. Making the decision
to leave the corporate world and give my full time and attention to the Gastroparesis Awareness Campaign organization
I started 3 years ago sure was the best decision of my life. Helping others around the world is truly priceless!
taking time to relax but pushing forward on the Gastroparesis Mission! I have come to realize sad but true that in life sometimes
society can be awfully quick to judge the book by its cover. If they don't walk in your shoes never expect others to
fully understand a 'unique' life with a disability. We are human but just living life a bit differently with a creative
touch, compassion and a whole lot of heart!
care of a pup is well a HECK of alot harder than 11 years ago before I was sick, what an awakening indeed it has been the
past few weeks. Takes more than myself to care for the little one but she sure does reminds me of my little CrystalBlue.
Animals give abundance of unconditional love and can be great therapy for the soul :)
tests, more tests, more tests, so many doctors come up with different theories on how I got Gastroparesis and well seems
no one 'really' knows the mystery question of why?.. During this next month of some very HOT temperatures I am doing
my best to increase fluids so I can stay hydrated and out of the hospitals. Trying to stay in remission with my flair ups
and keeping busy sure helps the mind!
left mass found during a routine ultrasound. The surgeons are not sure what the mass is, first thinking it was bowel wrapped
together with adhesion's but since they ordered a cat scan it now shows a mass not a bowel adhesion problem however the
mass is stuck deep between the intestines so it is going to be very hard to even get to the location surgically.
and follow up surgical consult to get my surgery date October 8th. I can't wait to have the mass taken out, makes me a bit
uneasy knowing it is there and I can't wait to finally get some normal sleep. There comes a time when you must get that 'Game-Face'
back on, I am ready!
am physically exhausted, mind is strong but my body is tired. I am not sleeping very well either which only makes me more
drained. Surgeon consult today went far from expectation, they all feel I could not go through another surgery
right now, they are now going to keep monitoring me on a monthly basis, so more repeat testing. I am just tired of being tired,
sounds funny doesn't it? Yes, one can still keep a sense of humor, you have to in life. I am B L A N K.....
week was final testing. Seems next game plan to remove part of the colon they feel is far too risky and I would
not make it through another surgery nor the recovery process. After a split second decision I agreed. There
is still much, much more Gastroparesis awareness to raise, many others to reach out and help to inspire to keep
the good fight! I also have alot more time to annoy everyone, heeheehee! I left my surgeons office shaking his hand with a
smile. I won't be seeing my surgeons for another 6 months. I must be proud for my GREAT fight I have given
over the past 4 years, I continue to find peace within. Indeed learning to appreciate far more now the little things
in life, the things that make you smile :)
I made it, another year, another day and now I am 37, where did the time go? Birthday cake for everyone!
for my records to move to Oncology? My current surgeons now realize even maybe things are too complex for them to handle,
I have to be ok with their honesty and I am. Hoping to get into the new pain mgr doctor within the next
few weeks, solid sleep would be a blessing about right now minus pain waking me up. Continuing to take things one day at a
time and sometimes even one hour at a time but you can't hold a good gal down, got those boxing gloves laced tight!
date was set yesterday for December 31st, the surgeons are not sure if there is much that can be done. My Gastroparesis and
related bowel motility issues will be a lifetime problem, they feel it is best not to remove any of the colon or intestines
at this point.
postponed. Can we say my patiences are running thin? I am ready for a one way ticket to Hawaii, celebrate Christmas with
a book in one hand and a margarita in another.
now rescheduled for February 2nd. Thank goodness!
meeting with all my specialists, heading back to main surgeon January 20th for final review, going over all risks and
benefits of upcoming surgery.
from Meningitis, will be 4-6 weeks, surgery has been postponed until March and upon being released from Neurology. I
thought Gastroparesis flair ups were bad! I think I have just found another Monster-Meningitis!
follow up with Neurology this week and talking to my main surgeons office, surgery will be postponed for quite sometime.
The post Meningitis part of balance and hearing issues still have yet to resolve. They can't give me a time, could be days,
weeks or months, so I need extra patiences. I can't wait to drive and get the heck out of the house, this is crazy! I feel
jailed in my own home, LOLOL! that did sound FUNNYYYY! You know me, never one to stay seated too long, I like to go,
go, go! I am however finding much success behind the scenes with new Gastroparesis Awareness Campaign Organization projects
so working full time at home while my body heals is proving to be VERY successful.
running another round of blood work. Due to the Meningitis and my immune system it is still a long road to recovery
and the game plan is holding off on surgery. Once repeat testing is done end of April they will re-evaluate the left
unknown mass, if it is still stable as show last month then we continue the watch and wait game however if it has grown
then Hematology/Oncology feels it is time for my Surgeons to go ahead with scheduling surgery. It is estimated to be another
2-3 months to finally rid the Meningitis symptoms and a possible year for my body to make a full recovery. My Gastroparesis
has been very angry lately with all the medications.
marks 5 years that have changed every aspect of my life- Idiopathic Gastroparesis. I don't look at my 5 year Gastroparesis
Anniversary as a bad thing, I truly feel blessed. If I look back over the years, Gastroparesis has completely changed
me inside and out. It has made me a far better person for it too, that is something I can't deny. Gastroparesis could have
taken my life many, many times but I refuse to let it control me and I will continue to find ways to work around those bad
days. Indeed today I celebrate five years of a new life and many, many more years of a GREAT fight!
years later and I have one heck of a team of specialists. They will continue managing each symptom as it arises. I couldn't
ask for a better team of doctors. Time to continue the good fight and I am ready! :)
spring time already! enjoying the nice weather before the heat and humidity return for summer. I don't get out as much as
last year due to limited energy but hoping for more good days ahead! Repeat catscans continue every 3 months for any changes
to give my surgeons the green light but blessed so far things continue stable with the left mass. I continue to live by the
day and not plan out since I don't know how I feel physically day to day.
term, unknown medical conditions such as Gastroparesis that lack the research and awareness I have learned can completely
flip your life upside down to great depths. I am in the process of questioning my next step medically with my surgeons. Our
great government and Social Security system is back-logged another year and 6 months for county cases. This now
leaves me waiting a total of 3 years for approval. Alot on my plate and just trying to sift through and figure
out which to tackle first. Let's just say if you are going through far too much in your life I totally understand how
you feel and my heart truly reaches out to each and every one of you.
had my upper scope last week, darn if I don't have a really bad case of gastritis from an infection as well Gastroparesis
doesn't help the situation either so back on meds for the next 30 days. They took my coffee away and any caffeine, I
feel like a walking zombie!
GI doctor called late last week on biospies that were taken during the upper scope procedure. Seems they can not do any further
dilations at this point because the choking sensations that still continue are not from constriction but lack of smooth
muscle contraction in the esophagus. What from? of course-my Gastroparesis. They would like for me to have the 'Esophageal
Manometry Test' placing a tube down my throat into my stomach-while awake. Of course my question is will there really be anything
you can do to correct the situation and their answer was-no. Now why would anyone just do a test like this if there is no
cure nor medication to help things? I was strongly advised to avoid solid foods and stay on liquids. I am now already at
90 percent daily liquids. They are going to run a follow-up catscan next month and then I need to schedule surgery with
my surgeons. I just am not mentally ready for a major surgery, I am not sure I will ever be at this point. I have honestly
been putting it off for almost two years now.
I not just post about putting off surgery for the past two years? The left mass is continuing to look more like
the ovary taken out almost two years ago that has regrown and been functioning once again. There was a right
bowel mass found on my scan however they are not sure what it could be and will only know upon surgery. My
surgical team will do surgery only as 'Emergency basis'. I have other reasons not to have surgery, not for awhile. Looking
very much forward to my favorite season just around the corner: FALL! :)
stable. Feels great to beat the odds as a Survivor after the long 5 year battle but will continue to fight!
Sure is time for some positive changes ahead! Looking forward to additional Gastroparesis projects for the winter so stayed
tuned, we have only just begun!
officially celebrates 4 years for the Gastroparesis Awareness Campaign organization and what an amazing journey it has been!
I have learned so much about myself and become truly inspired by others who suffer from Gastroparesis as well other chronic
medical conditions. No one is invincible in this lifetime. We all need to support one another, lend a hand, show kindness,
compassion and love. Thank you everyone for allowing my heart to continue to grow and remember you too are never alone. KEEP
ON! KEEPING ON! :)
10/30/2009-Over the past five
years I have truly grown to be a very spiritual person. I have taken alot of time to re-evaluate my health and have come to
the decision that I will hold off on surgery. My surgical team feels if I under go another surgery there is a very strong
chance this time I won't make it out as well there are alot of high risks that could lead to becoming paralyzed or worse losing
vital organs. They are not comfortable proceeding ahead which was fully discussed with me on a few occasions over the past
month. That being said I am finally at peace and ok with the decision to back away from surgery. No one can put a time on
your life, its only up to one person. I have a great fight ahead but I am more than ready :)11/14/2009-I am very
blessed to have recently celebrated my birthday. Living with a terminal condition puts life quickly into perspective.
Family and friends means so much more and the small things bring more happiness than the elaborate things we all take
so much for granted. Time has allowed me to form a closer bond to my family, friends and Sister. I decided to create
a 'Living Wish List' for next year so going to do my best to start living my wishes out because life is meant to
live! Thank you everyone for all your wonderful birthday and get well wishes. I am indeed touched! :)
did the year go? I can't believe it is almost Christmas and time for the festivities
around 'food'. *SIGH* Its amazing how much we celebrate with food and how
hard it is having a medical condition that limits what you can eat or drink. I call this
my 'moody time of year'-hahhahaha! CHEERS!
1/1/2010-HAPPY NEW YEAR EVERYONE! May your year be filled with many blessings
& GP Free days :)
1/26/2010-I feel the winds of change right over the horizon.
Doing some testing on new gym equipment and working with a few other companies
behind the scenes in hopes of providing more alternative options for Gastroparesis
Idiopathic patients. Will keep everyone updated on the results, etc.
2/2/2010-Do you ever wonder what in the world gets into people?
I find the hardest emails, letters and phone calls to take are from those who
lost not just their health and freedom but the support of family, friends
and loved ones. You have to really sit back and question the truth in those who seek to harm and
hurt others. I have seen the best in people through the years but as well on the flip side; the ABSOLUTE WORST.
I do believe in Karma and when you do good unto others good will come back to you in abundance.
VALENTINES DAY EVERYONE! May all your chocolate dreams come true!
2/23/2010-I will be blogging on my experience before and after surgery starting
February 21st, 2010.
3/17/2010-May everyone have a lucky
& blessed GP free St. Paddy's Day! :)
3/18/2010-Today marks the 6th year of the great GP fight! Here's to so many
who have been such a amazing inspiration. KEEP ON! KEEPING ON!
4/3/2010-Wishing everyone a blessed
10:10AM the hands of fate closed the door of a 2 year Social Security disability
battle that ended in a win for all of us. Truly a blessed day and God is good. I now stand before my new journey.
Life has indeed handed me a new deck of cards and everything I have known the past 6 years will be forever gone as
a new door opens and a medical plan of changes must take place in order to survive.
quite like getting hit with one virus/cold after another. I have been sick so
far most of this year. I can now understand why my surgeons ran out of surgical options due to my very
low immune system. I am starting to become fearful of going out in the public because I can't afford to keep getting sick.
5/15/2010-7 years sure caught up
quickly this week and since life has finally slowed down the hardest
part of tracing back all the years and coming to terms with everything sure isn't easy but taking
it one day at a time.
6/9/2010-Learning once again that me and the heat don't mix.
in life you have to go past your comfort zone. If not, you can't live
to enjoy it. This year I got to finally enjoy the 4th of July!8/1/2010-Maybe a HOT SAUCE convention
wasn't the smartest decision in the world. I guess even the best of us go into 'Gastroparesis Denial' time to time.
8/2/2010-Mid afternoon and as I check my email and log into the
support group I notice a repeated email and post. My heart just sank as I read
the news of my dear Angel friend Impy and she has passed onto a better place,
Heaven. It breaks my heart and the news is shocking. Impy was a second Mom to me and always there to guide me through
life's journey. Impy, I know you will always be watching over me, you are truly my Guardian Angel. Until we meet again, I
love you my dear friend.
9/6/2010-These darn seizures are still sneaking up on me. Just when I
thought they went away for good I am hit when least expected. Hoping the change in season less heat and sunlight means
less head issues.
10/2/2010-Finally the fall season is here! Praying for better GP days!
to head back to my doctors and surgeon this month. Not sure if they will go back
in surgically to dissect my organs off of each other so expecting the worst but hoping for the best.
11/10/2010-I MADE IT! Another year
I am blessed with life, here's to the good fight! 39 years! :)
12/10/2010-Trying to get into the
holiday spirit. I still have lots of shopping left to do. Now if I can just get
my body to follow my brain! Gotta push the Scrooge aside because even living with
a chronic condition there is a lot to be blessed for this holiday season, amen.
1/1/2011-A lucky day and blessed with a New Year! Here's to a
year full of positive changes! CHEERS!
2/8/2011-I sure hope this isn't a sign of another bad late winter
and early spring being sick. Seems the winter viruses are now making their way
around and I have become an unfortunate victim. Needless to say this house-jail
is getting old very quick! Not to worry because once I am better its time to get back to enjoying
life before the summer heat is upon us.
3/18/2011-Today marks my 8 year GP anniversary. I consider this a very
lucky day because I am still alive. I am a GP survivor! So much still continues to change in my life but that which doesn't
kill me can only make me stronger, AMEN! CHEERS TO VICTORY OF THE GREAT GP FIGHT! :0)
4/15/2011-Back to the GP race. Finding
alternate ways to help my destroyed immune system. I was placed on
round 5 of antibiotics and my lymph nodes are still swollen. It just never ends
sometimes but I refuse to let it take me down. Time to buckle up for the long road ahead....
5/1/2011-I am never one to have
to step back to concentrate on my life but I am now finding myself in a situation
where I have to take care of me and my health first. Hopefully I can be back in a good position soon
to reach out and help others but I first need to help myself. I can't be any good to anyone if I can't
get a grip on things in my own life first.
6/1/2011-After many months I finally
went back to see my main GI specialist. I wasn't expecting a very good visit seeing
things are progressing with my Idiopathic Gastroparesis and my immune system is now suffering. He
continues to be very concerned for my health and wants me to still go to the Iowa Dysmotility Clinic.
Honestly I am just tired of tests and no answers.
7/6/2011-Here we go again as my
Idiopathic Gastroparesis starts to rapidly progress. My low blood pressure problems
are no longer a mystery as I was told more mind blowing news today at my Cardiologist appointment.
My condition will not get any better but only worse. I have a list of tests and specialist appointments
this month in hopes they can help my heart.
8/1/2011-Once again I am released
from my specialists care after hearing the famous line, "There is nothing
more we can do for you." If I had a dollar for every time I was told that over the past eight
years I might just had a corvette by now, hahahaha! Doing my best now to survive mentally as my brain
catches up with my body.
9/4/2011-Trying to find balance and happiness again. Accepting fate as my Idiopathic Gastroparesis
continues to quickly progress.
10/3/2011-Change, change and more change. All positive though
because after coming close to a decade living with Idiopathic Gastroparesis it's
time to find this gal some much earned happiness! :0)
11/9/2011-A fresh new start and new decade in my life begins this month. Its
hard to believe its almost been nine years since my initial Idiopathic Gastroparesis
diagnosis. Although sadly I am experiencing more problems with my intestines I
am still determined as ever to defy the odds against me. CHEERS!
12/9/2011-Enjoying the festive season a bit differently this
year by creating positive memories. Crossing my fingers for a hospital-free December!
1/1/2012-A New Year means its time
for this gal to turn over a new leaf. AMEN!
2/2/2012-Going to try a few small
road trips this month. Life is far too short. Although one might suffer from a
terminal or chronic condition you also must time to time test your strength mentally and physically.
3/8/2012-My Idiopathic Gastroparesis
continues to wreak havoc on my internal organs. If it isn't one thing its another
but only as expecting in the life of a Gastroparesis patient. Sad when you start to become a pro
at bad news but only the strong survive! Amen! This month March 18th marks my 8 year GP anniversary
fighting the good fight as I continue to defy the odds. CHEERS! :0)
is going to be a Drano-Easter and a low key holiday weekend for this gal! I am
already beat with all the changes ahead of me as well numerous appointments with my specialists. Hopefully this
will be a quick month and I am already looking forward to May!
5/5/2012-So far the month of May looks
like I will be turning over some new leafs. I can't wait to see what the rest
of the month holds for me. If life is about change then soon enough mine will be taking a
long awaited turn. Amen.
6/7/2012-Waiting to see my new surgical team this month. Hoping to continue the step
by step process towards surgery. Out with the old in with the new as my life continues
on the upswing. CHEERS!
7/21/2012-Gastroparesis life guarantees one thing for certain, "Expect the unexpected."
One visit with one foot in the door for surgery and in one split second POOF!
it's gone. My GP has far progressed which means no turning back and no surgery.
extremely drained physically and mentally. Trying to keep my head on straight
and my internal organs safe from getting into any further trouble.
9/4/2012-Its no wonder I have been so tired and fatigued after finding
out from my specialist all the blood infections, rashes and other immune
problems are due to the progression of my GP. Praying for no tumors following
a scan scheduled for next month.
10/5/2012-Note to self: This too shall pass... Back down once again for the count fighting
another infection and virus.
the fall and winter are upon us! Time for comfy weather again so maybe my poor
body can catch a break. :)
12/4/2012-Praying for some seizure & GP-FREE days for the upcoming holiday season. Its
been a crazy year but I am forever thankful to continue the great fight for life.
1/4/2013-HERE'S TO A NEW YEAR AND A NEW ME 2013!! ;0)
2/4/2013-Praying for continued positive
changes and any little success I can get with new liquids for my GP diet.
3/4/2013-Cochlear implants are a
NO-GO however going to try a first with injections that could possibly repair
damaged nerve cells. Will know more by the end of the month.
4/3/2013-Does it ever end? Heck NO!~Back to the game of
specialists this month and with it comes
two procedures all due to the big "C" scare. GEES! We are just crossing our fingers
that I can still start the new experimental
injections by the end of the month. AMEN.
5/3/2013-What a WICKED procedure for cancer and just think I get to do it allllll
over again every 3 months now. What a way to start spring! Going to press forward
with experimental injections hopefully by next month. I can use all the help I
can get for the long battle ahead!
6/3/2013-Waiting for the approval for either
experimental injections or implant to help me feel overall better, more energy but most importantly
7/4/2013-INOPERABLE. No injections, no implant, no miracle cures, just allowing
time for peace to settle within. Praying for some GP-FREE days...
the surgery game. One day its "ON" then the next day its "OFF." Very frustrating and mentally
Mr. Tumor, let me count the ways... What I really need to do is try counting some
sleep this month. Of course after the next cancer procedure...
10/3/2013-I officially WON the surgery game! WOOWHOA!! Feeling
blessed to have my wishes granted by my lead surgeon. Strict dietary changes along
with structured work out programs up until day of surgery. 'Strong' is where I
need to be for a smooth surgery and successful road to recovery! :)